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35,993 claims
The report was disseminated to various stakeholders including the Scottish Rare Disease Implementation Board and the Association of Genetic Nurse Counsellors.
The report was disseminated widely including presentations to the Scottish Rare Disease Implementation Board (RDIB) and the Association of Genetic Nurse Counsellors (AGNC).
Commissioning · Procedural statement · From Rareminds CIO — annual report and accounts, year ending 31 December 2024, page 10
Rareminds CIO published a report on the mental health experiences of people with rare conditions post-pandemic.
In April 2024 we published the results of our ‘Rare Minds Matter - Mental Health and Rare Disease Survey’ report. The report explored the post-pandemic mental health experiences of the UK's rare community, shedding light on an often overlooked aspect of living with a rare condition.
Research · Observational claim · From Rareminds CIO — annual report and accounts, year ending 31 December 2024, page 10
Rareminds' Wellbeing Hub has six sections addressing common challenges associated with living with a rare condition.
the Wellbeing Hub currently has 6 sections which speak to common challenges associated with the experience of living with a rare condition
Service · Observational claim · From Rareminds CIO — annual report and accounts, year ending 31 December 2024, page 8
Rareminds' Wellbeing Hub and podcast are free resources for anyone to access or signpost to.
They are free resources for anyone to access or sign post to
Service · Observational claim · From Rareminds CIO — annual report and accounts, year ending 31 December 2024, page 8
Rareminds aims to secure funding and develop new partnerships to broaden access to affordable, specialist psychotherapy and counselling services.
Secure funding & develop new partnerships to broaden access across the rare disease community to affordable, specialist, psychotherapy, counselling & wellbeing support
Strategic · Policy statement · From Rareminds CIO — annual report and accounts, year ending 31 December 2024, page 8
Rareminds' Wellbeing Hub was accessed over 4,000 times in its first six months.
In its first 6 months our Wellbeing Hub was accessed over 4,000 times
Service · Observational claim · From Rareminds CIO — annual report and accounts, year ending 31 December 2024, page 8
81% of participants feel better equipped to manage the emotional impact of their condition after taking part in Rareminds' workshops.
of Rareminds’ counselling clients’ feel better equipped to manage the emotional impact of their condition
Service · Observational claim · From Rareminds CIO — annual report and accounts, year ending 31 December 2024, page 6
Rareminds established nine new dedicated condition-specific counselling services in 2024.
Last year we also established nine new dedicated condition specific counselling services - our highest number of new partners in a year to date
Service · Observational claim · From Rareminds CIO — annual report and accounts, year ending 31 December 2024, page 3
The Wellbeing Hub offers resources and information to address common mental health challenges associated with rare conditions.
The Hub offers resources and information to help address the common mental health challenges associated with having, or caring for someone, impacted by a rare condition
Service · Observational claim · From Rareminds CIO — annual report and accounts, year ending 31 December 2024, page 3
The Wellbeing Hub launched during Mental Health Awareness Week in May 2024.
Our new online Wellbeing Hub that launched during Mental Health Awareness Week in May 2024
Service · Observational claim · From Rareminds CIO — annual report and accounts, year ending 31 December 2024, page 3
Rareminds provided almost 6,000 counselling sessions since its establishment in 2020.
We have now provided almost 6,000 counselling sessions since our establishment in 2020
Service · Observational claim · From Rareminds CIO — annual report and accounts, year ending 31 December 2024, page 3
The charity received £17,732 in donations and £6,584 in gift aid.
Donations 17,732 30,049 Gift aid 6,584 5,551
Financial · Observational claim · From Chloe's and Sophie's Special Ears Fund — annual report and accounts, year ending 30 November 2024, page 54
The net expenditure decreased from £112,767 to £46,356.
Net expenditure (46,356) (112,767)
Financial · Observational claim · From Chloe's and Sophie's Special Ears Fund — annual report and accounts, year ending 30 November 2024, page 55
The total resources expended decreased from £391,128 to £353,198.
Total resources expended 353,198 391,128
Financial · Observational claim · From Chloe's and Sophie's Special Ears Fund — annual report and accounts, year ending 30 November 2024, page 55
The expenditure on charitable activities increased from £295,514 to £243,680.
Charitable activities Brought forward 239,864 261,813 Raising deaf awareness expenses 3,816 33,701 243,680 295,514
Financial · Observational claim · From Chloe's and Sophie's Special Ears Fund — annual report and accounts, year ending 30 November 2024, page 55
The total incoming resources increased from £278,361 in the previous year to £306,842.
Total incoming resources 306,842 278,361
Financial · Observational claim · From Chloe's and Sophie's Special Ears Fund — annual report and accounts, year ending 30 November 2024, page 54
Expenditure is recognised when there is a legal or constructive obligation to make payments, it is probable that the settlement will be required, and the amount can be measured reliably.
Expenditure is recognised where there is a legal or constructive obligation to make payments to third parties, it is probable that the settlement will be required and the amount of the obligation can be measured reliably.
Financial · Procedural statement · From Chloe's and Sophie's Special Ears Fund — annual report and accounts, year ending 30 November 2024, page 48
Income from trading activities includes income earned from fundraising events and other trading activities to raise funds for the charity.
Income from trading activities includes income earned from fundraising events and trading activities to raise funds for the charity.
Financial · Procedural statement · From Chloe's and Sophie's Special Ears Fund — annual report and accounts, year ending 30 November 2024, page 48
The charity is exempt from corporation tax on its charitable activities.
The charity is exempt from corporation tax on its charitable activities.
Financial · Policy statement · From Chloe's and Sophie's Special Ears Fund — annual report and accounts, year ending 30 November 2024, page 49
Gifts in kind donated for resale are included at fair value, being the expected proceeds from sale less the expected costs of sale.
Gifts in kind donated for resale are included at fair value, being the expected proceeds from sale less the expected costs of sale.
Financial · Procedural statement · From Chloe's and Sophie's Special Ears Fund — annual report and accounts, year ending 30 November 2024, page 48