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35,970 claims
HBDCA's Director was elected Chair of the EAHAD Psychosocial Committee and joined two new working groups to share expertise on psychosocial support.
I was honoured to be elected Chair. I was also at that time invited to be a member of two new EAHAD working groups: Joint Health, and Women with ultra-rare coagulation disorders. My hope is to share my psychosocial expertise with these two groups
Commissioning · Commitment statement · From Hbdca — annual report and accounts, year ending 31 March 2025, page 50
HBDCA's Director facilitated a monthly peer support group for women with ultra-rare bleeding disorders, which has been running for four years and includes 11 members.
On a voluntary basis, supported by the Trustees at HBDCA, I facilitate a monthly peer support group (virtual) for women with ultra-rare bleeding disorders which is in its fourth year now. There are 11 members of this group from across the UK.
Service · Observational claim · From Hbdca — annual report and accounts, year ending 31 March 2025, page 50
HBDCA facilitated two peer support group meetings per month for the Infected Blood community, which were valued by attendees despite fluctuating attendance.
HBDCA has continued to provide two peer support group meetings per month for the IB community, on a voluntary basis, which I facilitate. Although the numbers attending have been relatively small, fluctuating from four to eighteen, the feedback from attendees, and their commitment to attend the meetings twice monthly, has continued to demonstrate how invaluable these sessions have been during such a difficult and challenging time.
Service · Observational claim · From Hbdca — annual report and accounts, year ending 31 March 2025, page 49
The number of clients and patients seeking psychotherapeutic support from HBDCA increased due to the trauma experienced by the Infected Blood community.
During this year, quite understandably, HBDCA saw an increase in clients and patients being referred to us or self-referring themselves to us, requiring psychotherapeutic support related to their trauma as members of the Infected Blood community, whether ‘infected’ or ‘affected’.
Service · Observational claim · From Hbdca — annual report and accounts, year ending 31 March 2025, page 49
HBDCA has grown its team to nine psychotherapists and a part-time child psychologist.
HBDCA now has nine psychotherapists in its team as well as a part-time child psychologist
Operational · Observational claim · From Hbdca — annual report and accounts, year ending 31 March 2025, page 43
HBDCA holds reserves to safeguard its long-term future and sustainability.
It is HBDCA’s policy to hold reserves in order to safeguard the long-term future and sustainability of the CIO
Financial · Policy statement · From Hbdca — annual report and accounts, year ending 31 March 2025, page 42
HBDCA achieved all its objectives within the allocated budget for the period from April 2024 to March 2025.
All the objectives achieved during the period 1 April 2024 – 31 March 2025, were carried out within the monies received by HBDCA
Financial · Observational claim · From Hbdca — annual report and accounts, year ending 31 March 2025, page 41
HBDCA provided a written statement to an Inquiry in December 2024 about ongoing psychological distress experienced by the IB community.
HBDCA has contributed to an upcoming smaller Inquiry which will take place in May, 2025, by providing a written statement to the Inquiry team in December, 2024, centred around the ongoing psychological distress still being experienced by the IB community
Service · Observational claim · From Hbdca — annual report and accounts, year ending 31 March 2025, page 41
HBDCA adheres to the principles of public benefit as issued by the Charity Commission.
The trustees of HBDCA adhere at all times to the principles and guidance issued by the Charity Commission on public benefit
Governance · Policy statement · From Hbdca — annual report and accounts, year ending 31 March 2025, page 35
HBDCA has been facilitating monthly peer support groups for vulnerable communities in Kyrgyzstan.
Since then, HBDCA has been facilitating monthly peer support groups for three different groups: Single Mums, Parents of Newly Diagnosed Children and Young Adult Men with Haemophilia
Service · Commitment statement · From Hbdca — annual report and accounts, year ending 31 March 2025, page 35
HBDCA will continue to provide psychosocial support at multiple haemophilia centres across the UK.
HBDCA will continue to provide effective, high-quality, tailored psychosocial support to patients, their family members and carers at The Royal London Hospital Haemophilia Centre
Service · Commitment statement · From Hbdca — annual report and accounts, year ending 31 March 2025, page 38
HBDCA provides psychotherapeutic support to the Infected Blood community, which is crucial during a stressful and uncertain time.
This provision of high-quality, effective psychotherapeutic support is being made available through the HBDCA team, with its deep insight into bleeding disorders and into the Infected Blood community
Service · Commitment statement · From Hbdca — annual report and accounts, year ending 31 March 2025, page 37
HBDCA is undergoing a major overhaul of its website to reflect diverse areas of work.
Although delayed, HBDCA is now currently undergoing a major overhaul of its website to bring it completely up-to-date. Further content to its website will reflect the different and diverse cohorts it works with
Service · Procedural statement · From Hbdca — annual report and accounts, year ending 31 March 2025, page 33
HBDCA was instrumental in persuading NHS England to make in-person inductions mandatory for new IBPS psychologists.
HBDCA was instrumental in persuading NHS England that in-person inductions for any new IBPS psychologists should be mandatory. The event proved to be extremely insightful for attendees, with some of the new psychologists reaching out further to HBDCA, beyond that day, in order to gain additional, valuable insight into this unique community.
Commissioning · Procedural statement · From Hbdca — annual report and accounts, year ending 31 March 2025, page 30
HBDCA facilitated support for over 100 people during the Infected Blood Public Inquiry Final Report period.
More than 100 people were provided with support and a listening ear by HBDCA and its team during this time. It is impossible to put into words just how impactful those days were.
Service · Observational claim · From Hbdca — annual report and accounts, year ending 31 March 2025, page 28
HBDCA provided over several hundred calls to patients and clients in 2024-2025.
Several hundred calls have been carried out to patients/clients by the Director in 2024 - 2025. This has provided an additional layer of support to the Infected Blood community during this difficult year.
Service · Observational claim · From Hbdca — annual report and accounts, year ending 31 March 2025, page 26
HBDCA facilitated over 36 peer support group meetings for the Infected Blood community in 2024.
Separately, having mutually agreed and identified that there was a need for this, THT contracted HBDCA for a two-year period, which commenced at the end of January, 2023, to facilitate 4 peer support groups per month for the Infected Blood community. 36 peer support group meetings were held during this year.
Service · Observational claim · From Hbdca — annual report and accounts, year ending 31 March 2025, page 25
HBDCA provided over 100 psychotherapeutic sessions for EIBSS clients in 2024-2025.
From April 2024 to March 2025 HBDCA carried out more than 100 psychotherapeutic therapy sessions for 10 clients, as well as completing pre-assessment sessions for each one.
Service · Observational claim · From Hbdca — annual report and accounts, year ending 31 March 2025, page 25
HBDCA is planning a wellbeing event for women with bleeding disorders in the near future.
HBDCA is planning to facilitate a wellbeing event for Women with Bleeding Disorders in the near future.
Service · Commitment statement · From Hbdca — annual report and accounts, year ending 31 March 2025, page 21
HBDCA is contracted to support patients at the University Hospital Southampton Haemophilia Centre for two years starting in February 2025.
HBDCA has been contracted for 2 years, commencing in February, 2025, to support patients at the UHS.
Commissioning · Policy statement · From Hbdca — annual report and accounts, year ending 31 March 2025, page 21